Newborn Screening Committee

The Newborn Screening (NBS) Committee serves to advise the Board and the Association on matters regarding newborn screening as they relate to issues affecting the membership. Membership is open to all members having interest in newborn screening. 

• Monitor and evaluate trends, policies, etc. that affect NBS programs 
• Guide activities, education and training of the NBS community to address identified needs and priorities 
• Identify methods to retain institutional knowledge within NBS programs  

• NewSTEPs Steering Committee (affiliated, not directly overseen by the NBS Committee) 
• Quality Assurance/Quality Control (QA/QC) Subcommittee 
• Molecular Subcommittee 
• Ethical, Legal, Social, and Policy Issues (ELSPI) Subcommittee 
• Health Information Technology (HIT) Subcommittee 
• Newborn Screening Workforce Subcommittee 
• Hemoglobinopathies Subcommittee 
• Newborn Screening Symposium Planning Commit

• NBS Contingency Plan position statement renewal 
• Development of NBS positions and knowledge retention questions for the Knowledge Retention Toolkit 
• Identify a mechanism to continue to sustain the recommended uniform screening panel (RUSP) in the absence of historical review infrastructure 
• Collaboration with the Ethical, Legal, Social, and Policy Issues Subcommittee to review and/or update fact sheet on Adding Conditions to State NBS panels and pamphlet on Four Facts Policymakers Need to Know 

The Committee was instrumental in producing the following materials: